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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
The 2009 Hydrocephalus Survey results are posted!
Our next Hydrocephalus Conference will be held in Spring 2011.
The National Hydrocephalus Foundation needs your support!
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| Name: Kimmarie Harris | Posted: 2010-08-12 11:42:51 |
| E-Mail: Kimmybaby33@aol.com | Location: Toms River,NJ |
| I have had a shunt for 13 years.. Still going strong thanks to a wonderful Neurologist. (Dr.Bruce Rosenbloom) |
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| Name: Jennifer Power | Posted: 2010-08-06 11:51:52 |
| E-Mail: powerjenn@verizon.net | Location: Princeton, NJ |
| I am looking for a good Neurologist in the Princeton, NJ area for my Father. He has NPH and had a shunt placed about 2 years ago at Johns Hopkins. As he lives in the Princeton area he needs a closer doctor. He's not doing very well so I need someone very soon. Thanks so much! Jenn | |
| Name: julie klimko | Posted: 2010-08-02 16:31:52 |
| E-Mail: jul610mt@yahoo.com | Location: rhode island |
| i have been scheduled for vp shunt placement next month. i have a very long history of hydrocephalus/dandy-walker variant with temporal lobe seizure activity. this has gone untreated for over 20+ years and now i have neurologic deterioration at age 46. | |
| Name: Dave Watkins | Posted: 2010-07-30 20:14:18 |
| E-Mail: dlwchef1@hotmail.com | Location: pekin Ill |
| A very concerned father!! My daughter was born with Hydrocephalus 7-29-87 she was 11lbs 13oz and well As I was typing this letter I got the call from Debbi Fields and all I can say is Thank you Debbi,I took notes the entire time of the conversation and I can't wait to get the package of information you so kindly are sending us! Your knowledge and experience that you shared with me will help me sleep tonight Knowing I'm not losing It!! Thank you, Thank you, Thank you! Sincerly Dave |
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| Name: test | Posted: 2010-07-26 03:42:20 |
| E-Mail: | Location: test |
| test | |
| Name: Barb S | Posted: 2010-07-22 14:21:09 |
| E-Mail: bshort129@yahoo.com | Location: Indiana |
| Hello, looking to purchase vp shunts for chilfren in Honduras. Any help would be great. Need a name of manufacturer. please send any valuable info and thank you so much | |
| Name: grook.net | Posted: 2010-07-10 08:02:45 |
| E-Mail: ggrrkk@gmail.com | Location: grook.net |
| really nice website, keep going | |
| Name: C | Posted: 2010-06-26 15:57:55 |
| E-Mail: cayars54@yahoo.com | Location: Central Illinois |
| My husband has hydrocephalus and isn't doing well. We are dealing with the Veterans Administration for his medical care. His shunt placement operation wasn't performed in a VA hospital. (Emergency surgery in a neighboring medical hospital after removal of a colloid cyst) We have to use the VA medical facilities as we have no insurance. The VA neurologist is reluctant to deal with us. Any suggestions? | |
| Name: DEBORAH DAVIES | Posted: 2010-06-23 08:28:36 |
| E-Mail: DEB34@LIVE.COM | Location: WREXHAM |
| HI,DOES N E ONE HAVE A HEAVY BLOATED STOMACH PERMANTELY??? I HAVE,ITS GETTING ME DOWN,AND I HAVE ALOT OF HEAVINESS AND WEIGHT AROUND MY STOMACH,IM 100% SURE IT IS THE FLUID FROM THE SHUNT. DOES THE FLIUD STAY OR DRAIN? IM WONDERING IF MY HAS STAYED. |
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| Name: Jim Anderson | Posted: 2010-06-22 12:09:16 |
| E-Mail: jaa7488@comcast.net | Location: North West IN. |
| I lost my son Michael on 6-10-10 do to a shunt malfuntion during pre-surgery.He was 15 and still had the shunt that was put in at 3 days old. He had headachs in Feb.we had a CT.and the Dr. said no problems. They said his body had stoped absorbing the fluid coming from the drain. His pressure was double what it should have been he had sever brain damage.We lost his Mom in 2003 and I miss them both. | |