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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
The 2009 Hydrocephalus Survey results are posted!
The National Hydrocephalus Foundation needs your support!
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| Name: Frank Iacobucci | Posted: 2012-02-02 20:48:53 |
| E-Mail: oilmanx3@yahoo.com | Location: rhode island |
| i am a 46 year old male with hydrocephalus i was woundering how many of u are out there my age i have had it form brith i even work the shunt was installed in 1965 i was hopping too met otheres like my self feel free too e mail | |
| Name: Vicky | Posted: 2012-01-30 06:15:14 |
| E-Mail: vicky_lovey@hotmail.com | Location: Namibia, Tses |
| I have an 8month old daugther who was diagnosed with hydrocephalus but the neurology doctors told me that the baby's head need to grow before it is operated. Is the damage not done when the head starts grow since the baby does not grow or the milestones does not improve | |
| Name: Brian | Posted: 2012-01-10 16:38:55 |
| E-Mail: Brnstreet@insightbb.com | Location: Indiana |
| I looked through most of the other posts, but didn't see anything that related to my problem. I am 43 years old and have been shunted for hydrocephalus for about two years. I have noticed in the last 6 months that my stomach area looks like I swallowed a volleyball, I have always had a flat stomach, I am still active and I don't over eat. The only place I have gotten bigger is my stomach. I don't think my body is absorbing the fluid from the shunt like it should. Has anyone else had this problem and what did they do for it. Thanks | |
| Name: Laney | Posted: 2012-01-01 01:54:41 |
| E-Mail: Sladelover882@gmail.com | Location: Michigan |
| I am a teen and when I was 11 I was diagnosed with hydrocephalus I have a tumor in my left third ventricle and I have a left vp shunt | |
| Name: Stephanie | Posted: 2011-12-30 04:14:48 |
| E-Mail: sazurn@liberty.edu | Location: Virginia |
| I'm 20 years old and I was born with mild Hydrocephalus. I'm deaf in my right ear and had speech problems growing up. My parents decided when I was a baby to not get a shunt and by the complete grace and mercy of God, I have very little to complain about. I'm really thankful that I found this website, as it has helped me see that there are other people out there with my disease and I'm not alone. | |
| Name: Paul orofino | Posted: 2011-12-09 23:42:01 |
| E-Mail: paulorofino@yahoo.com | Location: Cameron Park, ca 95682 |
| Here is shout out to any fellow Hydro buddies in the northern Ca area east of sacramento get in touch. Iam 52 and still shunted with the very first shunt from age 7 months old. its the fixed vp Holter shunt. You can enjoy a life with a shunt. |
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| Name: Duncan | Posted: 2011-12-09 03:21:11 |
| E-Mail: grizz1ywired@yahoo.ca | Location: Souther Alberta Canada |
| Hi (again probably) Just letting all you good folks know I am having another shunt study done tomorrow, last one they told me was working but I have been in LOTS of Pain since my 19th surgery and prior to that also, Come to think about it I have been in PAIN the whole 4 1\2 years and well over 20 (just in the last 2 years) surgeries, Will this ever be better? Will I have to feel like this for the rest of my life? Will this eventually kill me? | |
| Name: Chris | Posted: 2011-12-07 01:52:36 |
| E-Mail: clp1134@att.net | Location: Bristol, CT |
| I have had a shunt for hydrocephalus for my entire life. The longest span that I had no problems was 19 years! My digest problem having hydrocephalus is that my failure symptoms are identical to a migraine. I wish that ER Dr's would listen to me instead of brushing it off as a migraine. | |
| Name: Greg McKenzie | Posted: 2011-12-06 23:39:57 |
| E-Mail: gmckenzi@comcast.net | Location: Harleysville, PA |
| I am a male and now 60 years old. I first presented with symptoms that would come and go back in 2001. A diagnosis was not made at that time. A couple of years ago I was starting with some of the usual signs of NPH. About a year later I was diagnosed the NPH. I had an adjustable sgunt placed but it only seemed to work for about 6 months. It was replaced by shunt of a fixed drainag rate. It stopped working w/in a few months. I now have a shunt w/o a valve to drain CSF and so far it's working. Any coments? |
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| Name: angel silva | Posted: 2011-11-28 15:15:32 |
| E-Mail: angsilva2000@yahoo.com | Location: stockton ca. |
| ive had hydrocephalus since birth, I basically live a normal life even though I have had my problems with it. | |