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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
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| Name: Sharron Quarrington | Posted: 2008-06-22 18:51:14 |
| E-Mail: sharron@magma.ca | Location: Ottawa Canada |
| My husband has a programmable shunt. The last setting he got a hygroma...this is not good. So the doc increased the pressure and helped the hygroma absorb. He has now been reset to a higher setting and 10 days later he is fine. This week he is on his way to rehab. He is writing again and reading and starting to play cards. His path has been a long one, you will know if you keep up with postings. But he is now on his way. He has been home for visits and it wont be long until he is home for good So those with NPH and have a programmable shunt this posting will be good for you to read |
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| Name: Gregory | Posted: 2008-06-22 06:47:14 |
| E-Mail: gregorysmith0427@yahoo.com | Location: Georgia |
| I was wondering is there any way to get the shunt taken out when you already have it in and the doctor(s) have already diagnosed you with it. The reason why I am asking is because it is so hard for me to deal with being teased and all the other teen usual.It was just like at school one day I was wearing a shirt and tie that day and everyone said I would never get in the popular zone.I guess they must have noticed the shuntWhy am I getting treated this way? Thank You, Gregory |
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| Name: Linda | Posted: 2008-06-21 16:42:01 |
| E-Mail: Tweeti6095@aol.com | Location: New York |
| Hello Everyone. I recently have had trouble with my eye sight. My glasses needed to be revised three times in six months. My doctor says it has nothing to do with the shunt. Im not to sure about this. He turned it up and down, for a few months. I was wondering or if im correct that the turning of the shunt affected my vision. Is there anyone else who have expericence this problem. Thank you. | |
| Name: Melissa Burde | Posted: 2008-06-20 21:29:57 |
| E-Mail: melissa_patterson@hotmail.com | Location: Sunrise, Florida |
| This website is extremely informative and helps those to open up about this condition in an open-forum | |
| Name: Charles K. Miller | Posted: 2008-06-18 15:21:31 |
| E-Mail: Biff.pa52@GMail.com | Location: Philadelphia, PA |
| I am especially interested in recent research that would support ( or defeat) the practice of the Endoscopic Third Ventriculoscopy in NPH adults (like myself), who do NOT want a shunt if at all posible. Thank you. | |
| Name: Charles K. Miller | Posted: 2008-06-18 15:17:37 |
| E-Mail: Bif.pa52@GMail.com | Location: Philadelphia, pa |
| How come many/most of these practical and clinical questions are not answered by the patients' cranial speceialists? | |
| Name: Ashley Roach | Posted: 2008-06-10 12:09:12 |
| E-Mail: roach.a@hotmail.com | Location: Calgary, Alberta, Canada |
| I have a five year old daughter with a VP Shunt who has started to wet the bed and her pants consistantly. She has been potty trained since she was two and a half. Has anyone experienced a problem similar to this? What are the chances it is associated with the shunt? She also has one kidney and while I doubt that contributes could there be a chance? | |
| Name: Ron Irons | Posted: 2008-06-09 12:09:13 |
| E-Mail: ronirons1@verizon.net | Location: Richmond, Virginia |
| Looking forward to attending the Hydrocephalus Assoc. Conference in Park City, UT, on the 18th of June and would like to find someone to share the room expenses with. If you are going and would like to cut your expenses please e-mail me and let me know. | |
| Name: frank h west | Posted: 2008-06-08 08:10:24 |
| E-Mail: frank.west40@yahoo.com.au | Location: perth western australia |
| i have had three revisions i now have a programable shunt but still suffer bad pain in my head even though i take all kinds of painkillers including durogesic patches....... any suggestions to help releive the problem. A. W. |
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| Name: Gregory | Posted: 2008-06-05 15:29:11 |
| E-Mail: gregorysmith0427@yahoo.com | Location: Georgia |
| I almost forgot to join the instant messaging support group you have to have a yahoo instant messaging account. | |