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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
Our next Hydrocephalus Conference will be held in Spring 2011.
Thank you to everybody who participated in our Hydrocephalus Survey!
The National Hydrocephalus Foundation needs your support!
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| Name: Jennifer | Posted: 2010-03-12 19:39:50 |
| E-Mail: jennifer_lucas@roadrunner.com | Location: Kentucky |
| I don't know how many times I have signed this guestbook, but I am looking for others to talk to that have hydrocephalus. I have congenital hydrocephalus and I am 26. I am looking for others to talk to on a regular basis from the US. If you would like to talk to me on a regular basis, message me. I don't know anyone else like me and I am lonely. Thanks Jennifer |
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| Name: belinda Pua | Posted: 2010-03-01 18:15:36 |
| E-Mail: lovemyhawaiian@gmail.com | Location: Maui, Hawaii |
| My daughter has an Arachnoid cyst w/ associated Hydrocephalus, enlarged ventricles, seizures, and fluid in her spine. She is a child of a Gulf War Vet. She is now almost 7 years old and will be having shunt surgery this year. | |
| Name: Paxton Stewart | Posted: 2010-02-04 11:13:39 |
| E-Mail: p.stewart@glasserectorsinc.com | Location: Sykesville, PA |
| I was hoping to find this place on Facebook, but it's not there. I am 30 years old, and have had hydrocephalus since I was about 3 months. When I was 18 my neurologist told me that I didn't need to visit anymore, and that they didn't think there would be complications from it. I haven't been to a neurologist since. I have a VP shunt, that I had placed in 5th grade (after the original fell out) and they told me that it's probably so old that it doesn't even work. Anyhow, I'm on Facebook, and anyone who is looking for someone to talk to can easily look me up with the email address here and send me a message. I'm open to conversation. |
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| Name: Gregory | Posted: 2010-01-31 09:40:04 |
| E-Mail: gregorysmith0427@yahoo.com | Location: Georgia |
| Hi Y'all, I want 2 make friends with people whom live in another country or state in the United States. I'm still having trouble making friends.I just want 2 find people that can relate 2 what I'm going through as a teenager.Hope 2 hear from someone soon. Y'all's Friend, Gregory |
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| Name: Angela | Posted: 2010-01-17 23:19:19 |
| E-Mail: angelahortega@yahoo.com | Location: Northern California |
| Hello. My mothers has just been diagnosed with Hydrocephalus. She was diagnosed with Alzheimers 10 years ago. I would like to talk to someone who is in this same position. We will be moving forward with shunt surgery for her and I would like to talk to someone to learn more about it. |
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| Name: Jan Wurtz | Posted: 2010-01-17 16:41:03 |
| E-Mail: jantinawurtz@msn.com | Location: California |
| My 80 year old mother was just diagnosed with hydrocephalus. One of the main symptoms besides having a hard time walking and some memory loss, is constant nausea. Her doctor told her nausea is not a symptom of hydrocephaulus. However, it all started about the same time. She is very aggravated and wonders if she needs to go to another dr. to find out if something is wrong with her stomach. Has anybody else experienced nausea with this disease? We would love to find out so she can get some relief. | |
| Name: Jessi | Posted: 2010-01-14 20:14:59 |
| E-Mail: Rebelangel1980@yahoo.com or Rebelangel1980@gmail.com | Location: Montoursville, Pennsylvania |
| Just a reminder to all who post I know what most of you are going through and will gladly add anyone to my prayer list that wants prayed for. just email me at either of my emails listed above. GOD Bless You ALL, Jessi |
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| Name: Misty Cowart | Posted: 2010-01-10 16:20:23 |
| E-Mail: deltamiss@bellsouth.net | Location: Jonesville, La |
| My son was diagnosed with hydrocephalus at birth. He had a shunt placed at 5 weeks old. He is now 15 mths old and is doing well other than some developmental delays. I would love to talk to anybody with children that has his condition!!! Thanks! | |
| Name: MICHELLE | Posted: 2010-01-09 20:33:00 |
| E-Mail: michelle_gouard@yahoo.com | Location: ILLINOIS |
| HELLO! MY NAME IS MICHELLE, AND I HAVE A NIECE THAT WAS BORN IN OCTOBER 2007, AT AROUND 24 WEEKS SHE HAD A 50/50 CHANCE OF MAKING IT. WELL SHE BEAT THOSE ODDS, WITH ONE EXCEPTION, SHE HAS HYDROCEHALUS. SHE WAS DOING FINE, JUST A LITTLE DEVELOPMENTALLY DELAYED. SHE COULD SIT UP BY HERSELF, HOLD HER BOTTLE, FEED HERSELF, WAVE HI AND BYE, AND SAY DADA, SMILE AT YOU AND A LOT OF OTHER THINGS.WELL IN JULY OF 2009, SHE WAS SHOWIN SIGNS THAT HER SHUNT WASNT WORKING PROPERLY. SO MY SISTER TOOK HER TO THE HOSPITAL AROUND MIDNIGHT AND THE DOCTOR SAID HE WAS GOING TO DO HER REVISION IN THE MORNING. WELL A SHORT TIME LATER, MY SISTER NOTICED HER CHILD WAS BEGINING TO TURN BLUE AND SHE ASKED THE NURSE WHAT WAS WRONG AND AL THEY SAID WAS SHE WAS HAVING TROUBLE BREATHING. WELL WHEN THE NURSE FINALLY TOOK A LOOK AT HER SHE WASNT BREATHING AT ALL. THEY CODED HER AND THEN BROUGHT HER BACK EVER SINCE THEN SHES HAD MULTIPLE SURGIES AND HAS BEEN HOOKED UP TO A NUMBER IF MACHINES. SHE WAS TRANSFERED TO A CHILDRENS HOSPITAL WHERE SHE WAS DOING BETTER. SHE JUST GOT TO COME HOME BEFORE CHRISTMAS. BUT NOW SHE'S NOT THE SAME SHE HAS A TRACHE TUBE AND FEEDING TUBE AND IS ON A VENILATOR. SHE'S PRETTY MUCH A VEGTABLE NOW. NO ONE IN OUR FAMILY HAS EVER HAD TO DEAL WITH ANYTHING LIKE THIS, AND I FEEL SO BAD FOR MY SISTER WITH HER BEING ONLY 26 AND HAVING TO CARE FOR A CHILD IN HER CONDITION. I WAS WONDERING WAS THERE ANYONE OUT THERE WHO CAN RELATE TO THIS SITUATION AND GIVE ME ADVICE TO GIVE TO HER. THANKS AND GOD BLESS | |